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The Silent Language of Love:
Life with Autism
by Cammie McGovern
Today in a new after-school gymnastics class
targeted for kids with a wide-range of special needs, I watch
my son Ethan, a nine-year-old with autism, blink with surprise
at a new girl walking into class. Taller than him by
at least five inches, she has striking red hair, glasses, and
Down's syndrome. For
whatever reason, I can see right away, she fascinates him. He flutters
closer, examines her from different angles, a technique he usually reserves
for particularly interesting machines.
If I were in the room with them, I'd be doing
what I always do because I'm his mother and can't help myself—I'd
bark directions and prompt conversation. “Ask
her what her name is!” “Tell her yours!” “Find out what school
she goes to!” And he'd probably do as he was told and, I suspect,
the interest would die. I'd have pushed him into the realm of what's
never interested him: ordinary conversation.
Instead, as she cartwheels, Ethan squeals
with laughter, bounces up and down, and then turns serious: “Nice
cartwheel,” he says, staring at her feet.
For Ethan, language is a perpetual stumbling
block. Asking a question
is a dangerous invitation to getting a question asked back, to launching in
on the exhausting business of talking back and forth. Recently,
though, he's learned that compliments serve nicely as predictable and brief
conversation starters.
“Thank you,” the girl says, nodding and readjusting
her glasses.
Usually an exchange like this would do the
trick for Ethan and be enough bonding for one day. He'd
go off and find a heating vent or a light switch to examine
close-up. But today, he stays with the girl, never taking
his eyes off her. For
the rest of the class they say nothing, but stay in each
other's vicinity. There's
a thumbs up at some point and even, when they get to the trampoline, a smile
from her. At the end of class, they are meant to shake hands with their
teachers, which Ethan usually does, but today he skips past his teachers to
poke his hand out in the direction of his new crush. For a horribly
long moment, it hangs there, hovering in the air between. I send up a silent
prayer—let her shake his hand, do something. Though he'd probably make
a speedy recovery, I fear my heart will break if she doesn't.
Then she surprises everyone: she looks down at both
her hands, chooses the wrong one, and gives it to him. As the
room empties around them, suddenly they are standing side by
side, holding hands, looking—more than anything else—stuck.
Is this terribly awkward? Are they dying of embarrassment? The
woman who must be her mother and I exchange glances. Should we sail in
and fill this silent tableau with our chatter and the exchange of names? Because
she holds back, I do, too and eventually they manage to end the moment themselves. Ethan
notices a light switch he hasn't flicked today; she spots her shoes, two ruby
red slippers to match her hair.
After it's all over, Ethan says only this: “I liked that
girl.”
Why? I wonder. Why did my son, who is afraid of new
people, who needs to be prompted to notice other kids, take
such a shine to her? I
can only think he must recognize something in her face about what they share—that
he knows, instinctively, the world is hard for her, too.
I'm still thinking about this scene the next morning at the
bus stop. In
our struggle to help Ethan gain speech, we have tried virtually everything that
books have offered us. He's got some sign language, enough that any time
we yell, his hands fly up to his chest and beat out I LOVE YOU over and over.
We make him ask questions, two of us at every dinner, two of his brothers; we
prompt him through stories, start his words for him. We have forced Ethan to
talk every single day and, though I'm sure this was right, I also wonder
if we haven't learned something ourselves from his reticence.
When you don't talk much, there are many things you also don't
do: you don't make up stories, you don't lie, you don't exaggerate
the truth to make everyone laugh and/or feel sorry for you.
You also don't manipulate, or bore people without realizing
it. I've spent years being jealous of parents with chatty children
until I got one myself and realized: Ah yes, some children
do go on and on, in a way that isn't always dreamy.
At the bus stop, Ethan's two younger brothers are infinitely
smoother than he. One
chats up another mother with a story of a closet monster, the other chucks sticks
on a roof with his friend from up the street. Ethan, as always, stands
alone, humming, a nervous eye on the horizon for the bus. Though he never
talks at the bus stop—there's too much to do, watching for the bus—he has recently
started a new practice of hugging all the mothers goodbye as the bus pulls up. Usually
he whispers what we should say before we can: “Have a good day,
Ethan.”
It's inappropriate, no doubt, and something we should probably
discourage before he gets to middle school, but for now, the
other moms love it and smile afterward. And
there's also this: our blissfully typical 6-year-old says goodbye by
chucking me his stick from the bus steps and calling, “Hold onto that until
I get home.”
We have learned that silence is a cloud with its own silver
lining. What
Ethan manages to communicate in his odd ways, in his gestures, in holding hands
with that girl, in his morning hugs can seem at times truer than a half-hour
of his brother's nightly laments about his playground popularity. Is
Ethan bonded to others? Does he communicate his feelings? Sometimes
I think that in the absence of easy access to words, there's a way he says the
real things better than the rest of us.
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